Help make Bálint's Christmas better.
Help Bálint, so he can have a wonderful Christmas!
DonateEvery financial support will go to Bálint's treatment.
Let's help Bálint, who is suffering from SMA.
Help Bálint, so he can have a wonderful Christmas!
Donate
Bálint Fehér is an 8-year-old boy from Slovakia who has been suffering from spinal muscular atrophy, also known as SMA. His only mobility is a wheelchair. Bálint is a kind, strong and persistent boy who is not ashamed of his illness. With this website, we are trying to draw people's attention to the disease, and we are trying to help Bálint. You can read more about the disease here.
Your support is dedicated exclusively to Bálint's medical treatment and therapy. The necessary treatment is done at the Hendi Centrum rehabilitation clinic in Slovakia. With the help of regular rehabilitation therapy, the load-bearing capacity of the muscles increases, and it has a positive effect on patients suffering from muscle atrophy.
Spinraza's active ingredient acts on the identified SMN1 gene, which is one of the genes involved in SMA. The drug works by affecting the SMN2 gene, which produces the same protein as SMN1, but only in limited amounts. The amount of protein produced by SMN2 in patients with SMA is usually insufficient to maintain proper muscle function. Spinraza can be given as an intravenous injection and used as a regular treatment. The first dose is given at a high dose, after which the doses are reduced. Spinraza therapy may be repeated at varying intervals depending on the severity of the disease and the age of the patient. Bálint has been receiving Spinraza for more than 6 years, and even if it is painful, it is a great help for him.
